Spina Bifida related links, and more.
UPDATED OFTEN
Because so many people
ask me what level or type of Spina Bifida Andrew has,
here is a map of the spine and definition
on the different types.
Spina Bifida Support
Information on places to chat with other parents,
adults w/ SB, or health care workers.
How to join the online/e-mail support
groups that we belong to.
The basics, what is:
Hydrocephalus
(water on the brain)
Arnold Chiari Malformation (ACM II)
Cervical
Laminectomy (Decompression)
Tethered Cord
The Biomaterials Access Assurance Act of 1997
CODMAN®-MEDOS® programmable Shunt
This is the type of shunt Andrew has.
Has won FDA approval!!!!!
Information on Hydrocephalus, Third ventricle, and other treatments.
What is a Individualized Education Program=IEP?
What is a Nonverbal Learning
Disorder Syndrome?
Hippotherapy Information
Duke University Medical Center
Won't you help this cause?
Lets help prevent Neural Tube Defects for the future of our
kids.
A link to a off-site that has a large
glossary
to every word used; about the spinal cord, and more~ A-Z.
Links for information about "Agent
Orange"
Address and phone numbers to: The SBAA and the Mass SBA
Definition on: Kyphosis, Lordosis, and Scoliosis.
Plus links to pages as well as a e-mailing list
--The FDA's point of view on folic acid--
We all know what mine is!
Off-site
How Folate Can Help Prevent
(some) Birth Defects
Definitions on: Bladder and kidney testing.
Information on the development of a UTI Vaccine
Helpful phone numbers to programs like;
SSI, Medicaid, Federal Resources, health and education
AND
Off-site Social Security-- Government
Homepage
The
Spina Bifida Association
has a list
Off-site
of latex-safe alternatives.
------------------------------------------
800 numbers to Toy and Baby
Product Manufacturers, to check for latex.
------------------------------------------
800 numbers to Medical
Product Manufacturers, to check for latex.
-------------------------------------------
A off-site link to a page to get info on:
Latex-free school supplies
-------------------------------------------
A list of some of the Non-Latex items we use with Andrew.
Read articles on how we got our town's library to adopt a no
latex balloon and latex glove policy.
-------------------------------------------
Need Latex free Balloons for
your next party?
How about Mylar
balloons?
Adaptive Clothing, Accessories, Diapers, Equipment,
latex-safe items and Educational Items
Addresses and phone numbers to ask for catalogs
Print and save.
A list of Books of interest to order;
Spina Bifida, ADD
etc.
Plans and pictures of the parallel bars my husband made
for our son.
Plans and pictures of a bath chair, by Terry Crownover
Come see pictures of our on-line support families!!
Read stories of their pregnancy and birth.
Don't forget to sign the Guestbook
Thank you
